“Papa has a bump, a bump filled with bad cells.” This is what we told our children 6 & 4 when we discovered this May that my man has cancer. He is a healthy 37 year old. He had a small hard bump on his pubic bone for a while and suddenly noticed in January that it had gotten bigger. He ignored it a while longer and then in April finally went to the doctor. We thought it was a hernia.

The doctor ruled out hernia and ordered blood work and a CT scan. The blood work came back fine and I sighed a huge sigh of relief! Silly me. After the CT scan my man met with a surgical oncologist who believed it was a Desmoid Tumor, a benign form of sarcoma. My man had a biopsy on May 12th and on May 18th I received a call from the doctor. She wanted to discuss my husband’s biopsy results with me, I immediately burst into tears.

We are told he is lucky in many ways; the tumor isn’t attached to anything important, it is operable, it hasn’t metastasized, but it is high grade which means it wants to. Since the original diagnosis we have had nothing but good news. But it is still cancer and it is still the scariest thing that has ever happened to us. My mother died of cancer when I was 24. It is hard to separate this cancer from hers, it is hard to believe doctors when they say my man will be fine, I have heard that before.

My man is German, and he is a Data Analyst. Thank god for small wonders. He is so calm and rational through this. I joke that I am freaked out enough for both of us. I hope to relieve my body of the physical hardships of being freaked out 24 hours a day by writing this blog. Maybe it will be useful for others as well. I do respond to stress with sometimes inappropriate/black humor so consider yourself warned.


4 Responses to About

  1. I have a blog that shares positive ways to build the immune system and fight leiomyosarcoma. Please come and visit. http://uterine-leiomyosarcoma.blogspot.com/2010/12/mind-and-body.html

    Also visit the discussion on Facebook at Uterine Leiomyosarcoma

  2. I’ll be praying for you and your husband and sending you lots of good energy. Bless you both!
    Jeannie recently posted..Natural Treatment for Uterine Leiomyosarcoma- Retreats for Healing

  3. Amanda

    My dh is 38 and has cancer. Actually he has PostRadiationSarcoma. This is his third bout. He and I share a 4 year old and 2 1/2 year old. Both boys. Mama, I understand. I will keep you in my thoughts and prayers.

  4. Mike Postorino

    Hey, I had a chance to read through your blog and found it to be very inspiring and insightful. It seems like you have a wonderful and strong family.

    Our organization, Mesothelioma Center, just finished up a batch of interviews with mesothelioma cancer survivors and published them on our site: http://www.asbestos.com/mesothelioma/wall-of-hope.php. Their stories provided me with a lot of perspective on what it must be like to be battling this disease. Maybe you can find them rewarding as well. I’d love the chance to get in touch with some other survivors for opportunities to share their story as well.

    Maybe you can help us spread mesothelioma cancer awareness by posting some quality information on your blog. Let’s work together to spread as much cancer awareness as we can!

    Best Regards,
    Mike Postorino
    Mesothelioma Center

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